Call Me Cozy – The New York Times

If I really thought about it, which I didn’t want to, I had been sick since I was a child (seizure, migraines, full body rashes) and I had resisted, with all my might, things like the park, the beach and the bouncy castle.

While my hesitation to play with others isn’t likely a symptom of anything but a bad attitude, a specialist told me I had been living with Ehlers-Danlos syndrome, of the hypermobile variety, a genetic disorder that can lead to widespread physical pain. Mixed connective tissue disease, mast cell activation disorder and Lyme disease were also thrown around.

Now, in adulthood, my body hurt too much for the theater or the hip restaurant with wooden benches or even, sometimes, the embrace of someone I loved. I could no…

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